Patient Organisations

(BPA)

MTPA provided BPA with sponsorship to cover the annual BPA Conference, designed by patient advocates where patients and families can meet, learn and share inspiring stories, where there is also a chance to meet informally with medical professionals. Another event the funds will help is the BPA Connect event which is an event that holds peer sessions in a social environment and a relaxes, informal setting. Any reminders sponsorship funding will go towards BPA awareness campaigns which consist of educational materials and the use of various media channels to educate the public about porphyria’s, symptoms and impact on patient and their families, particular awareness campaigns are run on Rare Disease Day and Porphyria Awareness Week.

MTPA held no control, authority or influence as to how these funds were used within the agreed use for events and awareness. However in return for this sponsorship MTPA will benefit, during the events the company logo will be used on information programmes, and placeholder slides throughout the day, any post event publications will also display the company logo in acknowledgement of the sponsorship, members of the global company were also invited to attend the events for free and a representative of the company was invited to speak at the BPA conference, the benefits to MTPA for sponsoring the awareness campaigns were acknowledgement of the sponsorship including use of the company logo on websites, published materials including newsletters and communications, members of the Mitsubishi Tanabe Pharma organisation were also invited to partake in a patient advocate learning opportunity

The events for campaigns did not promote any MTPA products or investigational products directly or indirectly

(GPAC)

MTPA acted as a Corporate sponsor to exclusively fund expenses directly related to five of GPACs 2025 strategic aims and two activities at the ICPP.
ICPP is a biennial event, where leaders of global patient advocacy groups can network, access the latest important updates in research and meet other members of the porphyria community. support includes travel and attendance of three GPAC executives to attend the congress, support will also contribute to the translations of PAG posters and AV displays including awareness videos displayed at the event.
The remainders of this sponsorship will go towards GPAC strategic aims for the year, these projects include communication costs in order to gain support for activities and events including social media management, educational and awareness campaign Global Porphyria Day (GPD) initiatives, Website development which includes additional translations, Educational and professional development of GPAC leadership such as attending 2025 porphyria related conferences, events and symposiums. GPAC also outsource support to ensure skilled personnel are available to develop materials, branding and research in countries where support is needed.

MTPA held no control, authority or influence as to how these funds were used, just an understanding that all funds will be used as per the activities listed above. In return for this sponsorship acknowledgment as a sponsor/supporters to GPAC the GDP promotional videos, toolkits and materials will display the company logo, including post event reporting and acknowledgements. Recognition of support will also be included on GPAC’s website, ICPP posters, annual financial reporting, and agendas posters for annual general meetings.

The event did not promote any MTPA products or investigational products directly or indirectly

MTPA acted as a corporate sponsor of this online webinar, the sponsorship fee provided was used exclusively to fund expenses directly related to this individual webinar.

MTPA held no control, authority or ability to influence the decisions of how the funds were used.in acknowledgement of this funding MTPA benefitted verbal recognition at the webinar, logo placement on the webinar presentation slides, logo with link on the webinars webpage and logo and company name included on output documents from the webinar.

The webinar did not promote any MTPA products or investigational products directly or indirectly

MTPA provided sponsorship funds to help with the Fundamental Rights for People with ALS/MND and Caregivers survey 2025, this survey is conducted globally and captures lived experiences, tracks the progress towards fundamental rights and captures research to better understand and provide insights into where fundamental right are being met and where gaps remain and how advocacy can drive change. The funds provided by MTPA were used to share the survey via webinars, presentations and social media, data analysis of the costs and to update documents detailing rights of people with ALS/MND and caregivers.

MTPA held no control, authority or ability to influence the decisions of how the funds were used. in acknowledgement of this funding MTPA benefitted from logo placement on the survey introduction page, recognition in the global survey invitation email to alliance members, early access to survey results, logo placement and recognition on the survey report and reports for statistically significant countries, verbal and visual acknowledgment to survey webinars and presentations relating to the survey results with an opportunity to speak at the webinar and also participate in focus groups as an industry representative.

The survey or any following webinars or presentations did not promote any MTPA products or investigational products directly or indirectly

MTPA provided financial support for the live online CRLI programme, designed to educate attendees about ALS/MND research, research studies and how they work including study design, clinical trial challenges, ethical considerations and research advocacy, sessions are led by international experts and people with lived experiences. The funding provided funds communications and promotion of the new program, funding towards educational materials and toolkits both printed and digital for the event.

MTPA held no control, authority or ability to influence the decisions of how the funds were used. in acknowledgement of this funding MTPA benefitted from an invitation for two representatives to attend the live virtual program, verbal recognition of the sponsorship during the welcoming and closing sessions, logo placement on all marketing materials and the company name and logo on resources and program of the event. The acknowledgement of the sponsorship was also featured with the company name and logo in the alliance newsletter.

The event did not promote any MTPA products or investigational products directly or indirectly

MTPA acted as a sponsor of two events, the sponsorship fee provided was used exclusively to fund expenses directly related to this event

MTPA held no control, authority or ability to influence the decisions of how the funds were used. In acknowledgement of this support MTPA benefitted from complimentary registrations for in person attendance for five members of the group company, five virtual registrations, Logo and company name in the newsletter to acknowledge sponsorship, Logo placement of webpages relating to the events, at the events the logo will also be placed on a rotating banner and verbal recognition. MTPA were also offered the opportunity to host an in person or virtual exhibitor space.

The event did not promote any MTPA products or investigational products directly or indirectly

MTPA acted as a sponsor of this four part webinar series, the sponsorship fee provided was used exclusively to fund expenses directly related to this event. Such expenditure included educational and marketing materials for the events and output materials shared after the events.

MTPA held no control, authority or ability to influence the decisions of how the funds were used.in acknowledgement of this funding MTPA benefitted by having the company name and logo featured on marketing materials prior to the event, output materials shared after the discussions and acknowledgement of the sponsorship in the alliance newsletter, along with these benefits MTPA received verbal recognition at the roundtables and invitation for three representatives to attend the roundtables.

These events did not promote any MTPA products or investigational products directly or indirectly.

MTP-CA acted as a sponsor of two events, the sponsorship fee provided was used exclusively to fund expenses directly related to this event

MTP-CA held no control, authority or ability to influence the decisions of how the funds were used. In acknowledgement of this support MTP-CA benefitted from recognition of the sponsorship including the company logo and/or company name being displayed on the event website, signage, promotional materials, social media posts and press releases in relation to the event.

The event did not promote any MTP-CA products or investigational products directly or indirectly

(BPA)

MTPA acted as a corporate sponsor of a BPA arranged event, the sponsorship fee provided was used exclusively to fund expenses directly related to this event.

MTPA held no control, authority or ability to influence the decisions of how the funds were used. In acknowledgement of this support  MTPA benefitted from the company name/logo being shown on information provided including programme and event promotional materials and post event publications and an invitation for an MTPA representative to sit on the BPA patient day Q&A. in addition to this day 2 of the event was the BIPNET annual conference where tickets would be provided to company representatives and also the option to have a table top exhibition stand.

The event did not promote any MTPA products or investigational products directly or indirectly

MTPA acted as a corporate sponsor of this event, the sponsorship fee provided was used exclusively to fund expenses directly related to this event.

MTPA held no control, authority or ability to influence the decisions of how the funds were used.in acknowledgement of this funding MTPA benefitted from verbal recognition at the roundtable, the company name/logo being displayed on the Alliance newsletter and roundtable marketing materials and any outputs from the discussions after the event. 3 MTPA representatives were also invited to attend the roundtables.

The event did not promote any MTPA products or investigational products directly or indirectly

MTPA acted as a corporate sponsor of this event, the sponsorship fee provided was used exclusively to fund expenses directly related to this event.

MTPA held no control, authority or ability to influence the decisions of how the funds were used.in acknowledgement of this funding MTPA benefitted from verbal recognition, the company name/logo being displayed in the December newsletter, event webpages, event materials provided, such as programs and agenda and on an interview backdown for Live at the Alliance. 7 Complimentary in person and 7 virtual registrations were also provided to MTPA representatives.

The event did not promote any MTPA products or investigational products directly or indirectly

MTPA acted as a corporate sponsor of an online webinars, the sponsorship fee provided was used exclusively to fund expenses directly related to the Webinar Series.

MTPA held no control, authority or ability to influence the decisions of how the funds were used. in acknowledgement of this funding MTPA benefitted from verbal recognition at each webinar, the company name/logo being displayed within the webinar presentations, logo and link on the webinars webpage, logo placement of the alliances e-newsletter and the company name and logo included in output materials from the webinars.

The event did not promote any MTPA products or investigational products directly or indirectly

MTP-CA acted as a corporate sponsor of this event. the sponsorship fee provided was used exclusively to fund expenses directly related to this event.

MTP-CA held no control, authority or ability to influence the decisions of how the funds were used. in acknowledgement of this funding. MTP-CA benefitted from recognition of the sponsorship including the company logo and/or company name being displayed on the event website, signage, promotional materials, social media posts and press releases in relation to the event.

The event did not promote any MTP-CA products or investigational products directly or indirectly

MTP-CA acted as a corporate sponsor of this event. the sponsorship fee provided was used exclusively to fund expenses directly related to this event.

MTP-CA held no control, authority or ability to influence the decisions of how the funds were used. in acknowledgement of this funding. MTP-CA benefitted from recognition of the sponsorship including the company logo and/or company name being displayed on the event website, signage, promotional materials, social media posts and press releases in relation to the event.

The event did not promote any MTP-CA products or investigational products directly or indirectly

MTP-CA provided an educational grant for this event, the funds were used exclusively for educational purposes to cover expenditures for this event only.

MTP-CA held no control, authority or ability to influence the decisions of how the funds were used. in acknowledgement of this funding. Audience members at this event were notified during the event and on any event programs and publication supplied at the event including educational materials of MTP-CA educational grant funding.

The Event was for educational purposes only and any medicinal product discussion was free from commercial bias for or against any product and that any presentation of information about MTP-CA’s products (or competing products) was an objective and balanced discussion of prevailing information about the product(s) and alternative treatments.

MTP-CA provided an honorarium fee to a representative of the international Alliance of ALS/MND Associations, this was to support a non-accredited learning program for innovated medicines.

The HCP will act as chair to the OLA using their skills and knowledge to facilitate the discussion between participants. including presenting a 90 minute presentation of How to break the News in ALS/MND.

MTP-CA will have no editorial control over the HCPs presentation and content. the OLA is free from commercial bias and the HCP will provide a balanced view of relevant therapeutic options. MTP-CA benefitted from this as the HCP disclosed to the OLA audience and in presentation materials that financial support had been provided by MTP-CA.

The HCP shall not directly or indirectly advocate or promote the use of any MTP-CA products.